I can now officially add radio to my long list of media appearances, talking about the subject near and dear to both our hearts 'mr lupus' (okay maybe long is not quite the right term but I have now appeared on both TV and radio)
I'm back home from sharing the air waves with the esteemed Eddie Nestor (2007 speech broadcaster of the year) Well my mother always said if I was going to do something I should aim for the top. I just never realised the journey to the top was going to be such an uphill ride.
I fancy myself as a bit of a radio personality, after all I do have the gift of words and I am convinced I was born to talk for a living so watch this space. Anyway back to my moments of fame. We (Already I am taking this broadcaster thing seriously) were joined by Angie Davidson from St. Thomas' Lupus Trust and talked openly about mr lupus, his antics and the affect his presence has on us.
Eddie asked me a poignant question how does (mr) lupus affect me on a daily basis, a question I thought I knew the answer to but on reflection I'm not sure I have ever articulated it honestly before. In fact just thinking about it makes me feel a little uneasy as I realise just how much in denial I have been about so many lupus things in my life. I didn’t want people to see me differently, but the truth is I am different and difference does not have to mean negative. I think I have mistaken the 'glass is always half full' thinking with if you ignore it somehow it will all magically go away.
I am tired and disappointed or more appropriately 'pissed' off at the way things are and the way they have turned out but until I face mr lupus head on I am going to continue moving in ineffective circles.
So today I am going to come clean by writing down exactly how all of this is affecting me. I know this may well change tomorrow but my concern is less about tomorrow and more about right here and right now. My feelings are quite strong and I am not yet ready to share them with you so please bear with me as I go through my lupus detox
Thank you Eddie and Angie for pushing me to face my demons.
Please join me!
Now is also the time for you to come clean. Get your pen and paper out and write down exactly how you are feeling, what/who annoys you, makes you feel angry and how this is all affecting you. Don’t be afraid, let it all out. Allow your words to be the healing balm reaching the parts that steroids never could.
Don’t let mr lupus off the hook. When you are satisfied with your outpouring read it over in the knowing that by releasing it all you have taken another major step on the road to wellness (the other step was reading this blog) and then burn it
Before mr lupus gets too complacent with all of the attention write him a ‘Dear John’ letter telling him how you feel and what his presence does to you and why you will put up with it all anymore.
Remember a detox always gets ugly as it clears away the debris and the crap before giving way to a cleaner, decluttered and you.
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Greetings from DC, Carole.
Wanted to let you know I featured your blog in the "Lupus Blog Spotlight" on the LFA blog. http://lfa-inc.blogspot.com/
Have a great week.
Wick
Hi Carole
I was honoured to share the airwaves with you and Eddie and thrilled that a station gave us so much airtime to talk about lupus.
Great blog, I'll be back to visit Mr Lupus again, although I live with his sister, Ms Lupus!!
Angie Davidson (St Thomas' Lupus Trust)
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Hi Carole,
Thanks for this blog. Ive added your blog as my favourite. You really put words together brilliantly. Keep up the great work. I just did your lupus detox. Was awesome. Ive never done it before, so was a relief.
lots of love
Sherry
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